I had good days and bad days. On the good days, my mood was better, the pain was less, and I could enjoy the little things like my kids, cooking, day trips. I even had a couple girls’ nights out with some friends. The bad days were really bad. I was in bed, in pain, going crazy, and absolutely nothing else. As I mentioned in the pain post, I missed a lot of work. Over 6 months, I took leave without pay so often I don’t think I got a full paycheck even once. I am very lucky to have had such an understanding supervisor.
I poured over every piece of Lyme disease data I could find. Online, at the local library, in books I bought. Modern medical texts, forums and chats, blogs, historical books. I tried to learn everything. Looking back, I think that was part of my problem. There is so much information out there, but not all of it is accurate, and a lot of it is contradictory. And the vast majority of what I found was completely subjective. Even some of the medical texts and scientific studies had an element of theory or derived results. It’s so easy to get lost in all the data. My brain fog and my inability to quite understand what the heck was going on with my body made sorting all the data that much more daunting.
At my doctor’s suggestion, I searched for supplements to help with symptoms. I took all of them. I even bought one of those pill sorter things that are marked with the days of the week. A big one to handle all the pills. On top of the Tramadol and heart-palpitation-stopper pills, I took COq10, probiotics, spirulina, blue green algae, vitamin b complex, vitamin c, zinc, magnesium, and I know there are other things I don’t remember. I know there was also some liquid I took. I know the COq10 was for heart support, and the probiotics were to keep the antibiotics’ side effects away, but I can’t remember why exactly I took all the other things 2-3 times a day. Every day. For months. Except that I read somewhere on line that I should.